Soccer Time for Special needs Teens
Posted Sunday October 11, 2015 at 08:00 PM
We attended our first Soccer game of the Season. The weather was beautiful, the kids were excited to be outside and so were the Para's and Teachers. We enjoyed watching the spectators, who were cheering on the kid in the wheelchair throwing the ball. We laughed when our 14-year-old grandson started cheering with the special needs cheerleaders. Pure enjoyment was written on his face. I felt so proud when the High School kids came out and cheered the kids on. These Special needs kids can do allot, just differently. If you ever want to feel pure joy, come and watch a game.
Lisa Morrell
Posted Friday August 28, 2015 at 04:19 PM
3 children lost their lives last week to autism and wandering. What were their Names? Nobody knows......but every one knows the name of the lion. It's sad and tragic, all lives matter, or do they? Can you hear the silence? Autism Yes!!! I think we deserve answers, and it is more like 1-33 now.
Do I matter?
Posted Friday August 28, 2015 at 04:21 PM
So what matters? Love matters. Relationships matter. People matter. Every single person matters. Black people, white people, little people, infant people, disabled people, elderly people, rich people, poor people, religious people, and non-religious people. Everyone single soul matters. They have value, they have worth. They have passions and dreams. Even when people make bad choices and do bonehead things, they have good qualities that matter. Even terribly evil people matter, if for nothing but the lesson of forgiveness and hope of redemption
We Challenge 1 million people to send a $1
Posted Friday August 28, 2015 at 04:03 PM
Dilly's Place
January 19, 2011 ·
Challenging 1 million people
Dilly's Place is Challenging 1 million people to send $1 to Dilly's Place.
Please read. Our address is at the bottom of this note. Thank you all.!
by Dilly's Place on Tuesday, January 4, 2011 at 5:47pm
I am the grandmother of a severely autistic child. We started this project with $20 and a prayer. It was important to us from the very beginning to make this a handicap accessible park and a fenced in park. We knew that would make this park different. Anyone who has a child with a disability knows that equipment, and in order to make things accessible it will be expensive. As a family, we didn't go to parks much as Dylan is a runner and we always chasing him or worrying that he would run out in the street. We would travel to Wellington to a park that was fenced in and would only provide limited access to wheel chairs. While there we noticed a young girl in a wheel chair who couldn't navigate her chair well, so her mother would pick her up and carry her to a piece of equipment and put her in it. It was so important to me, that with fundraising , we could come up with a great park.
One big issue to make this park accessible was the ground surface. I know that woodchips are ADA
By Linda Hare
Posted Friday August 28, 2015 at 03:59 PM
“DILLY’S PLACE WILL BE BUILT SOLEY ON DONATIONS, GRANTS AND LOVE. THIS IS A HUGE UNDERTAKING, BUT NOTHING WORTHWHILE IS EVER EASY. THIS IS WHERE WE NEED YOUR HELP.
TIMES ARE HARD FOR EVERYONE, BUT THAT DOESN’T MEAN THAT WE CAN’T STILL REACH OUT AND HELP ONE ANOTHER. THIS IS EXACTLY THE TIME THAT WE SHOULD DO EXACTLY THAT.
CHERYL, ALONG WITH OTHER HELPING HANDS, WILL BE SPONSORING DIFFERENT EVENTS TO RAISE THE FUNDS FOR THIS DREAM. YOU WOULD CARE TO JUST MAKE A DONATION THAT TOO WOULD BE VERY MUCH APPRECIATED.
PLEASE HELP US TO HELP ALL KIDS HAVE A SAFE AND ACCESSIBLE PLACE.: DILLY’S PLACE
THANKS.
PLEASE MAKE ALL DONATION'S dillysplace@rocketmail.co po box 633 Conway Springs, Kansas
67031 Or by using our PayPal button at the top of the page. Thank You
From My Cousin Linda
Posted Friday August 28, 2015 at 03:56 PM
HI EVERYONE:
WAS THERE EVER A DAY IN YOUR ENTIRE LIFE THUS FAR WHERE YOU WISHED THERE WAS SOMEWHERE THAT YOU COULD GO AND FEEL SAFE, FEEL SECURE, FEEL WANTED? WAS THERE EVER A TIME WHEN FEELING THE WIND ON YOUR BACK, THE SUN ON YOUR FACE AND LOVE IN THE AIR AROUND YOU WAS JUST WHAT YOU NEEDED JUST TO GET THROUGH THAT ONE MORE DAY? MOST OF US HAVE. FOR MOST OF US THE ABILITY, THE RESOURCES AND THE FREEDOM TO EVEN FIND SUCH A PLACE IS PROBABLE. IT MAY BE AS SIMPLE AS A TRIP TO THE OCEAN, A WALK IN THE WOODS, A SECRET PLACE WHERE WE GO IN OUR HEARTS.
SADLY, THERE ARE THOSE WHO DO NOT HAVE THE ABILITY, THE FREEDOM OR THE CAPABILITIES THAT ENABLE THEM TO EXERCISE THAT GIFT OF ESCAPE THAT WE SO READILY TAKE ADVANTAGE OF.
THEY ARE TRAPPED IN A BODY THAT SOMETIMES SOCIETY DOES NOT READILY ACCEPT OR UNDERSTAND. THEY ARE LEFT FRUSTRATED AND OFTEN THAT FRUSTRATION MANIFESTS ITSELF IN WAYS THAT WE AGAIN DO NOT ACCEPT OR UNDERSTAND. MANY OF THESE PEOPLE ARE CHILDREN.
MY COUSIN (AND THE COUSIN OF MANY OF YOU AS WELL) AND FRIEND,
CHERYL KELLY AND HER DAUGHTER CRYSTAL HENDERSON KNOW THIS FRUSTRATION. THEY LIVE IT EVERY DAY THROUGH THEIR GRANDSON AND SON DYLAN. DYLAN, A HANDSOME, VIBRANT, WONDERFUL LITTLE BOY WAS BORN WITH AUTISM. CRYSTAL AND HER FAMILY, INCLUDING
HER SWEET DAUGHTER CHLOE, HAVE EXPERIENCED BOTH THE JOY AND FRUSTRATION OF LIVING WITH THIS CHALLENGING OFTEN STIGMATIZED CONDITION.
DYLAN IS A LITTLE BOY WHO LOVES TO PLAY, WHO LOVES TO EXPERIENCE LIFE AS ANY LITTLE BOY WOULD. YET, THAT IS NOT ALWAYS POSSIBLE.
TO TAKE DYLAN OUT INTO THE PLACES THAT WE THINK NOTHING ABOUT GOING TO IS NOT ONLY OFTEN DIFFICULT BUT SOMETIMES DOWNRIGHT IMPOSSIBLE. LEAVING HIS FAMILY WITH LITTLE OPTION AND DYLAN WITH LITTLE HOPE.
BUT WHAT IF YOU KNEW THERE WAS SOMETHING THAT YOU COULD DO TO HELP GIVE DYLAN AND OTHER CHILDREN WITH SIMILAR CHALLENGES A CHANCE AND THE FREEDOM TO EXPRESS THEMSELVES THE WAY WE CAN?
CHERYL AND CRYSTAL has HAD A LEADING FROM GOD TO BUILD A PARK FOR DYLAN AND OTHER CHILDREN WITH DISABILITIES. A PLACE WHERE THEY CAN GO WITHOUT WORRIES, STARES AND ALL THE OTHER
COMPLICATIONS THEY USUALLY FACE WITH A SIMPLE DAILY OUTING. INSTEAD OF COMPLAINING AND ACCEPTING THIS AS THIS BEING “JUST THE WAY IT IS”. THIS WONDERFUL AND BRAVE FAMILY HAS DECIDED TO DO SOMETHING ABOUT IT. NOT JUST FOR DYLAN BUT FOR ALL CHILDREN, DISABILITY OR NOT. WHAT BETTER WAY FOR CHILDREN TO LEARN FROM EACH OTHER, PLAYING TOGETHER CREATES ACCEPTANCE, LEARNING TO HELP EACH OTHER AND JUST HAVING FUN.
Cold Cold Day!
Posted Friday August 28, 2015 at 03:52 PM
Dylan must have been surrounded by Angels
Please, if you ever see Dylan outside the fence PLEASE let Crystal, Travis or Chloe know. Autistic kids love to explore and be outside. We had a blizzard blow into town, the windchill was -20's. Dylan was in his bedroom watching a movie. For some reason we don't know, Dylan took his blanket and went outside. The wind had blown the gate open, out he went. I take Dylan to Casey's store sometimes. He was barefoot, with a blanket on him. He fell got up started walking to Caseys. Guess he thought he would find some warmth. Several people saw him, someone commented on him not having shoes on. The First indication something is wrong with him. Amy Oswald saw him and brought him home. Thank you, Amy. Dylan must have had angels around him that day. There was no lingering effects, no frostbite. We thank the Lord for watching over Dylan and sending Amy to take him home. We watch him like a hawk. With not allot of help, it's hard to stare at him 24 hours a day. In a split second, he can be gone. Please help us! If you see Dylan please call 3275 or 2123. 911. Thank You!
Our Community
Posted Friday August 28, 2015 at 03:50 PM
This park, Dilly's Place "Where EVERY kid can be a kid" no matter thier ability, has brought out the best in Conway Springs. The Dad and mom who want a safe place for their kids to play, the grandma who can't hardly chase the grandson all over the park but still wants him to learn from others, the community who you just mention something you need and they wonder how much. When we first came to Conway Springs, we drove by the Park. This is the heart of the Community. We have our Churches but not everyone goes to Church. We saw kids walking around town and riding bikes. You don't see that in the big Cities. I love to go to the Post Office or Casey's and see people I don't know personally but stop and ask how I am. I never go to Hiredman's Grocery Store unless I have a little extra time to visit... Remember the middleschool girl who raised $1,000 during lent baking cookies for Dilly's Place, The 5th grader who had a lemonade stand and raised money for us, The family from North Carolina who gathered an envelope filled with $1 bills and sent it, All the donations for our Taco Feed, Golf Tournament, ect.. It is taking a Community, family , friends and hard work to raise the funds for this Park. Let's don't focus on just one person. Look around your Community and Thank God you live in such a caring and giving place.
Friess Cow Auction
Posted Friday August 28, 2015 at 03:49 PM
Dilly's Place worked hard at the Friess Auction. Thank you to Wish and Betty Ternes , Judy Hilger , Kadee Hilger, Chloe Henderson, Mark Kelly, Travis Hennen and Crystal Henderson for working. Also Thank you to Jeanette Hilger, Margarett Rush for making pies. A big thank you to Kathy Friess and her sisters for making pies and roll up cakes. We had some awesome cheese cakes. Sorry, I can't remember who made them. The Friess family for donating the food and pop and letting us work the concession for their auction.
We made $402.58. Yea!! You guys Rock...
Bowling with Dylan
Posted Friday August 28, 2015 at 03:46 PM
Here is a funny story. When Dylan was either K or 1st grade we went with his class bowling. Dylan was known as a runner and if you blinked your eye or turned your back for one second he was gone or naked or both. Dylan didn't want to put the bowling shoes on so him and grandpa were in there socks bowling together. Dylan when he was done bowling would walk beside grandpa back to there chairs. Dylan saw his move and took... He started running down the alley toward the bowling pens. Grandpa, noticing he was alone was trying to walk after Dylan but it was slick and he was just in his socks and Hollering get back here Dylan. Well Dylan must have heard him and he started cutting accross all the lanes. Everyone had stopped bowling and was watching the 2 of them and laughing. Grandpa was cutting accross the lanes. Dylan got to the last lane and started walking to the end and a teacher grabbed ahold of Dylan. Just thinking about this funny story brings back funny and happy memories. This is one reason why grandpa Mark Kelly was our hero and still is.
We all love Family Fun Day
Posted Friday August 28, 2015 at 03:45 PM
We found out how hard it was to take Dylan on trips, As a Family we went to Worlds of fun. Not only did Dylan get a sensory overload from all the noise, crowds and lights but he also didn't have the patience to wait in line. Mothers would tell their children to look the other way during a melt down. So it was just easier to stay home. Dylan's sister Chloe missed out on a lot. We would plan on going to the pool and Dylan would have a meltdown. No pool today, we will make it up to you Chloe. The idea of having a place where families could come and if a meltdown occurred it was no big deal. Family Fun Day started at Camp Hyde. We have to pay the YMCA money to rent it for 4 hours is ok. We go to allot of Businesses in Wichita for Sponsors. We are so blessed by the look on the families faces. We have wonderful volunteers. This year will be our third year. God is good!
June 14 11am-3pm
Free to families with disabled kids
Camp Hyde 49 and 71st. Viola
Agressive Behavior in Autistic Teens
Posted Friday August 28, 2015 at 03:42 PM
Rule out or address underlying medical and sensory problems
First and foremost, it’s important to have your child evaluated for underlying medical and sensory issues that may be contributing to the meltdowns. Examples include the pain of GI distress, disrupted sleep and sensitivities to a jarring new school environment. So if you haven’t already, please consult with your child’s therapist and physician about evaluation possibilities.
Look for the early signs
Clearly, it’s better to avoid an explosion than find yourself dealing with one. Sometimes an attentive parent can learn to recognize triggers and spot signs that tension is escalating. Your child’s behavioral therapist may be able to help you here. I find that parental attentiveness to emotional clues is particularly important for children with autism, who tend to have difficulty “self-monitoring.”
In the midst of the crisis
But what if you, like so many of us, miss the early warning signs, and your child appears alarmingly close to damaging your home or hurting someone or himself?
One thing is certain, there’s no way to rationally work through a behavioral crisis in the midst of one. Safety becomes the priority, and this may mean calling 911. However, here are some guidelines that can help keep everyone safe.
1. Stay calm. Breathe. Your child’s behaviors will likely trigger your own strong emotions. You need to manage them. By way of analogy, think of an aggressive behavioral outburst as a fire. Don’t fan it with energy and excitement. Your goal is to smother it by remaining calm, patient, firm and reassuring.
2. Talk quietly. Talk less. For many of us, the impulse is to talk when things are getting out of control. Remember that when someone is in full meltdown mode, he or she isn’t able to reason. Autism adds to this difficulty, even for highly verbal children. When highly stressed, your child may have difficulty understanding what anyone is saying. A good rule of thumb is to talk far less than you want to. Consider not talking at all. When you do speak, keep your sentences short and concrete – maybe one or two words paired with a visual signal.
3. Create a safe zone. You’ll need one or two calm adults to stay with an aggressive child. Beyond that, I suggest clearing the vicinity. Certainly have other children leave the room. Also remove objects that could cause injury and/or try to shift your child to a safer space. Look for a quieter space that will provide less stimulation for your child or an area where he or she can pace, jump or engage in whatever sensory activity allows him to calm down naturally. This can be as simple as a walking “loop” in your home. Do stay near your child so that you can monitor safety at all times.
Families can also proactively organize spaces to make it easier to move a child and others out of harm’s way and to remain in eyesight while maintaining a safe distance. Consider furniture arrangements that allow for open spaces and provide routes to exits and safer rooms. You may want to anchor shelving, pictures, lamps, curtain rods and the like to prevent them from being knocked down or thrown. If possible, enclose media centers and computers in secure cabinets.
You might consider smoothing or covering walls and sharp corners with soft materials. I recommend “Making Homes that Work: A Resource Guide for Families Living with Autism Spectrum Disorder and Co-occurring Behaviors.” (Follow the link to download this Department of Health and Human Services resource.)
4. When restraint is needed. Even short-term physical restraints should be an option of last resort. But it’s an option some families has to consider when all other means of assuring safety have failed. Ask your child’s therapist to help you find specialized training for protecting yourself and appropriately managing aggressive behavior using safe, short-duration holds and physical restraints. One such program is the Handle with Care Behavior Management System.
Only after appropriate training should anyone attempt to use holds or restraints on your child. Done improperly, they can cause serious injury or even death. It’s particularly important to stay calm. You don’t want to convey that a hold or restraint is being used in anger. After your child has calmed down, let him or her know that it was done out of caring and a desire to keep everyone safe, not punishment.
Looking beyond the crisis
Remember that children are a “work in progress” as they transition through their often-turbulent adolescent and teen years. This is a time for learning strategies that will serve them well in adulthood. With the help of your child’s therapist, work on behavior plans that will help your child practice healthy ways of releasing tension, coping with stress and expressing strong emotions. This is one of the reasons it’s so important to start noticing patterns that lead to a blow-up. After your child has calmed down, you can discuss these insights to help your child make plans for a “better next time.”
Increased aggression in teens with autism is a serious issue for a family. Handling an aggressive crisis is distressing and exhausting for everyone. Over time, it can produce feelings of isolation and hopelessness. It’s so important to remember that you’re not alone. Many families deal with such issues, though some feel too embarrassed or overwhelmed to speak up and seek help. Please share your concerns and seek the support of other parents and professionals. Good self-care may be more important now than ever.
Autism Speaks Autism Response Team can provide additional help locating resources in your area. Call 888-228-4762 (en Español 888-772-9050) or email familyservices@autismspeaks.org.
Fundraisers
Posted Thursday August 27, 2015 at 12:56 PM
Our Fundraisers and other people who raised donations for us include Taco Feeds, Silent Auctions, Basketball Camps, Garage Sales, Bake Sales, Lemonade Stands, 13-year-old took orders and Baked Cookies, Golf Tournaments, Shirt Sales, enchiladas, $1from a million people, Vacation Bible School, Quartermania, Craft Fairs, Kids from St. Joseph Catholic School, Art Show, 50/50 raffles, 50/50 Basketball bracket, Barrel Racing Food, Memorials, 4-H Horse Show Food, Leo Club at CSHS (local High School), Matching Funds,
Empowering parents
Posted Thursday August 27, 2015 at 09:18 AM
Parents feel lost when they have a Special Needs Child. Having a diagnosis does not mean help is on it's way. Children with special needs are competing to get the services they need. Children with labels attract money. Children without labels don't attract any money. In the meantime services are being cut, kids that are out of control are not getting the help they need. More Children are being diagnosed each day with something.
http://www.empoweringparents.com